Review of learning disability respite services

Public consultation – 4 September 2017 to 10 November 2017


The independent report of the public consultation on learning disability respite services has been published and is available to download below:

Independent consultation report

Easyread of independent consultation report

Have your say

The CCGs are keen that people have the opportunity to comment on the report, to ensure it reflects the feedback they provided as part of the consultation. There are a number of ways people can respond and these are detailed below:

Telephone: 0191 374 2795


Write to: Communications & Engagement Team, North of England Commissioning Support, John Snow House, Durham, DH1 3YG

Facebook: For those living in the Middlesbrough and Redcar and Cleveland area, search for ‘NHS South Tees Clinical Commissioning Group’. Search for ‘NHS Hartlepool and Stockton Clinical Commissioning Group if you live in the Hartlepool or Stockton areas.

Twitter: @SouthTeesCCG or @HaSTCCG

The CCGs will consider all feedback prior to making a decision.


How and when the CCGs will make a decision

NHS Hartlepool and Stockton-on-Tees CCG and NHS South Tees CCG will make their independent decisions on the outcome of the Respite Opportunities and Short Breaks for People with Complex Needs and Learning Disabilities and/or Autism public consultation at the following joint meetings:

‘Executive Meeting in Common’

This is a meeting of the Executive Groups from South Tees CCG and Hartlepool and Stockton-on-Tees CCG.  The Executive Groups are made up of local family doctors (GPs) and senior NHS managers.  This meeting will take place in January 2018. This is an NHS business meeting and not held in public.  At the meeting, the Executives will consider all of the information related to the consultation and agree a recommendation to their individual Governing Bodies.  This recommendation will then be considered by a ‘Governing Body in Common’.

‘Governing Body in Common’

This is a meeting of the Governing Bodies of both CCGs.  The Governing Bodies are made up of the people in the Executive and lay members (see CCG websites for further information).  This meeting will take place on Thursday 1 February 2018 from 4pm-7pm and is open to members of the public who can observe the meeting.

Members of the public will have the opportunity to meet with and talk to members of the Governing Bodies from 4pm until 4.45pm, before the start of the Governing Body in Common meeting at 5pm.

This meeting will take place at the River Tees Watersports Centre, The Slipway, North Shore, Stockton-on-Tees, TS18 2NL.



NHS South Tees Clinical Commissioning Group and NHS Hartlepool and Stockton-on-Tees Clinical Commissioning Group (‘the CCGs’) have launched a 10-week formal public consultation on proposed changes to respite opportunities for people with complex needs, learning disabilities and/or autism.

The consultation, which will run from Monday 4 September 2017 to Friday 10 November 2017 follows a joint review of health respite services for people with learning disabilities and complex needs, and their families and carers, across Teesside.  Further information is available below.

The consultation is in line with the national and regional ‘Transforming Care’ agenda, looking at how people with learning disabilities and their families and carers can use a bigger range of different types of services, closer to where they live.  Importantly, there should be less reliance on services that are provided within hospital, making sure there are good services available in the community.

The CCGs have produced a number of documents to help people understand the background to the consultation, and offer opportunities to take part in the consultation.  This includes completing a survey, or attending a public meeting.  Please see below for further information.  If you have any queries about the consultation, please contact the Communications and Engagement team on 0191 374 2795 or email

Consultation documents

Consultation narrative document

Easyread consultation narrative

Consultation booklet

Stakeholder briefing

Press release

Frequently Asked Questions

Case for Change

Consultation events poster

Engagement session for voluntary sector organisations

Equality Impact Assessment

Previous engagement


Easyread Document – Review of Respite Services for people with learning disabilities and complex needs

The CCGs worked in partnership with the four Local Authorities across the South Tees and Hartlepool and Stockton-on-Tees areas to ensure that the review considered complex health and social care needs.

The aim of the review was to ensure that health respite services appropriately meet the needs of the local population now and into the future and it was carried out in the context of the Transforming Care programme.

Transforming Care is a programme of work to enable more people with learning disabilities and/or autism who have complex needs to live in the community, with the right support and close to home. More information about Transforming Care is available on the NHS England website or the North East and Cumbria Learning Disabilities Transformation Programme website

Both Transforming Care and the NHS Five Year Forward View include a strong emphasis on personalised care and support planning, personal budgets and personal health budgets to put people at the centre of their care to enable maximum choice and control about how their own needs are met.

The review of health respite services for people with learning disabilities will help the CCGs to make sure that families and carers of people with learning disabilities and complex needs are supported, valued and recognised within their roles.

As part of the review, the CCGs talked to people with learning disabilities and complex needs, and their families and carers, to understand more about:

  • What the expression ‘respite services’ means to them
  • What they think works well with current respite services
  • How they think respite services could be improved.

Engagement activity took place from December 2016 until the end of February 2017. This included discussion groups and questionnaires. The aim was to ensure that people with learning disabilities, their families and carers are influential in the development of appropriate services to meet their needs now and into the future.

To ensure that people with learning disabilities and complex needs can have their say, the CCGs are working in partnership with Inclusion North, a not-for-profit organisation that promotes the inclusion of people with learning disabilities, their families and carers.

A questionnaire was developed for families and carers that could be completed online or if preferred, downloaded, printed and returned to the FREEPOST address on the questionnaire (no stamp required). Alternatively, printed copies were available on request.

The engagement activity helped to inform the development of a number of possible ‘scenarios’ for the provision of health respite services for people with learning disabilities in the future. These scenarios will be ideas on how learning disability respite services could be further developed or delivered differently to best meet the needs of the local population.

It is important to note that there were no fundamental changes to the type of respite services available for people with learning disabilities while the review was conducted. Following the review, scenarios that are developed that are viable and sustainable in the longer term may be taken forward as proposals for change to improve respite services.

Any proposals for significant change will be subject to formal consultation with people who use respite services and the wider public. If any proposals for change are not significant, these will be subject to a further period of informal engagement, as opposed to formal public consultation.

The CCGs produced a Respite needs and responsibilities paper.  This contained background information to help people take part in the review.

Please see full post review engagement report attached below, a summary of the engagement report, easy read version of the summary and newsletter.

HaST STees Respite Review Engagement Report

Easy Read engagement summary

Engagement summary